Patient Resources



Illness Specific Organizations

American Syringomyelia & Chiari Alliance Project
Association of Gastrointestinal Motility Disorders
Association of Pediatric Oncology Social Workers
B+ Foundation
Band of Parents
Be The Match
Bonnie J. Addairo Lung Cancer Foundation
Boomer Esiason Foundation
Boston Foundation for Sight
Cancer & Careers
Cancer Hope Network
Cares Foundation 
Caring for Carcinoid Foundation
Chiari & Syringomylia Foundation
Chiari Connection International
Chiari Institute
Children’s Brain Tumor Foundation
Children’s Organ Transplant Association
Chris Carrino Foundation
CURED Foundation
Cushing’s Support and Research Foundation
Desmoid Tumor Research Foundation
Dystrophic Epidermolysis Bullosa Research Association (DebRA)
Ellie’s Hats
Friends of Karen
Got Cureage
Guthy Jackson
Help Hope Live
Hugs for Brady
International Myeloma Foundation
Jessie Rees Foundation-NEGU
Jett Foundation
Leukemia Lymphoma Society
Liddy Shriver Sarcoma Initiative
Life Raft Group
Little Hercules Foundation
Lustgarten Foundation
Max Cure Foundation
Mesothelioma Guide
Michael Magro Foundation
National Brain Tumor Society
National Children’s Cancer Society
Pennsylvania Cystic Fibrosis Inc.
Protect Allergic Kids
Rare Beyond Compare
Stevens Johnson Syndrome Foundation
Stupid Cancer
Sunrise Fund at Stony Brook University Medical Center
The Dolan Fund
Tigerlily Foundation
Voices Against Brain Cancer
Worldwide Syringomyelia & Chiari Task Force